Resources

There are many good websites. Here are a few:

National Down Syndrome Society  www.ndss.org

Down Syndrome Health Issues www.ds-health.com

The Arc of Somerset County        http://www.thearcofsomerset.org/

The Arc of Essex County         http://arcessex.org/

Stepping Stones Early Intervention Program         http://www.steppingstonesnj.org/

The Judy Center for Down Syndrome  http://www.hackensackumc.org/our-services/pediatrics-joseph-m-sanzari-childrens-hospital/judy-center-for-down-syndrome/the-judy-center-for-down-syndrome/

  There are also many good books:

For Parents:

  • Babies with Down Syndrome: A New Parent’s Guide, published by Woodbine House.
  • Medical and Surgical Care for Children with Down Syndrome, a Guide for Parents, edited by D. C. VanDyke and P. Mattheis, published by Woodbine House.
  • Uncommon Fathers - Reflections on Raising a Child with a Disability, edited by Donald J. Meyer.
  • Expecting Adam - The Story of Birth, Rebirth and Everyday Magic, by Martha Beck.

Our favorites, and highly recommended books:

Gifts - Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

Gifts 2 – How People with Down Syndrome Enrich the World

These fine books help dispel the fear and misinformation about Down syndrome that many parents and prospective parents face. As these deft essays convey, the world would be a sweeter place with more Down syndrome citizens, not fewer. --George F. Will

For Children:

  • We'll Paint the Octopus Red, by Stephanie Stuve-Bodeen and Pam DeVito.
  • The Best Worst Brother, by Stephanie Stuve-Bodeen and Pam DeVito.
  • Views From Our Shoes, edited by Donald J. Meyer.

Additional Resources:

New Jersey Division of Developmental Disabilities:

The Division of Developmental Disabilities serves more than 35,000 people with developmental disabilities. Most services are provided through state contracts with private organizations or individuals. The availability of services depends on current resources; the types of services may vary in each county.       http://www.state.nj.us/humanservices/ddd/index.html

SPAN - Statewide Parent Advocacy Network: The mission of the Statewide Parent Advocacy Network is to empower and support families and inform and involve professionals and others interested in the healthy development and education of children and youth.       http://www.spannj.org

United Healthcare Grants Help Pay for Children’s Medical Needs-Speech Language Treatment, Hearing Aids Covered -      http://www.uhccf.org

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